Meet Miss Sydney aka Super Syd aka The Mighty Bean.
I had the blessing to meet this girls mom a couple years ago, when she was asking around in our neighborhood for someone to make Sydney’s birthday outfit. I was lucky to get to do it because I gained a friend. I didn’t know at the time but this little girls birthday was something huge to celebrate.
She has defied the odds, and is a walking miracle.
You see she was our first girl after having 2 boys! She was the gift we prayed for!
We pushed her hard! We worked with the most amazing therapists! And at 3 years old Sydney took her first steps with a walker! We all stood there with tears in our eyes while we saw this beautiful little girl smile from ear to ear!
As the years have passed, we have learned so much more about Sydney’s illness. Today, we know she also has epilepsy, scoliosis, IIH, autoimmune disease, and demylinating polyneuropathy.
WE NEED YOUR HELP!!! We have been working hard for a year now to get genetic testing done. Sadly, we continue to be denied!
The insurance company says that genetic testing will not change her treatment plan!
The doctors are baffled! You see a child with CP shouldn’t get worse! We have been told what Sydney has may be life threatening. We need to know what she has! It will change her treatment! It will give us MUCH needed answers!
Rock and Amber Gaylord